If I could help any parent of a child with AMC, I would send them to the
convention that is held once a year by www.amcsupport.org.
We went last year and it was life
changing. I can't emphasize on how much it has brought us back on our
feet, and see Arthrogryposis in a whole new light. All the negative
comments doctors make, all they have is an educated
guess. I've spoken to so many people in the medical field who have responded to me with "Arthrogry-what?"
Imagine you walk into a room and all you are is
surrounded by so many beautiful people that have the same thing your
child has, or that you have. I remember standing in line at the convention waiting to
register, and this little boy starts walking towards me. He was
uppers only like Mikaela, and I started to cry. It was the first time I've seen another child like my daughter.
I was overwhelmed with joy throughout the whole convention, and so
relieved to not feel alone anymore. These people, who put their
heart and soul into every convention to help families all over the world
are simply angels in my eyes. So giving and not asking for anything in
return, they just want to help.
If you'd like to make a donation, to
help keep these conventions going every year, please see Mikaela's donation
page, or send your donation to:
Multiplex Congenita Support Inc.
P.O. Box 1883
Salyersville, KY 41465
The 2010 AMC Convention will be held in Florida!