We have the honor of knowing these amazing people/families and have found so much hope and love along our journey. Here are some links to their stories.
Support Group for Arthrogryposis Multiplex Congenita
provide and encourage more understanding and mutual support among anyone
affected with the diagnosis of Arthrogryposis Multiplex Congenita (AMC).
create a higher standard of AMC awareness by means of Conventions,
Abby One Mom. One Dream. And a little girl with Arthrogryposis.
The first place I found hope! Ani is simply, AMAZING! She has been there from the start and I don't know what I would have done/do without her. I have a page dedicated to her and her daughter on this website called www.forabby.com
"Aunt Reesa" who paints with her mouth, has been such an inspiration to us, and people all over the world. Every year at convention she holds a "Painting with
Theresa" session with hundreds of
kids with the same "DIFF"ability. We have one of her paintings hanging in the girls bedroom.
If there is any word to describe
this man, it would be Awesome! Ever since we have come in contact with
Ward, he has become such a huge part of our lives. He's always been
there for Melanie, helping her through all her trials and tribulations.
Ward Foley has gone through it all and shines though with a smile.
Jenilee is the treasurer of www.amcsupport.org and works tirelessly for the good of
the AMC community. But besides that, WE LOVE HER! She's so awesome and has such a huge heart! Mikaela loves her Auntie Jen!!
Tracey has been such a huge help to us. She has been through so much and keeps that beautiful smile on her face. Having countless sugries and hospital stays, I don't know how the girl does it! She's SO Strong!
Jennifer Kumiyama is so beautiful on the inside and out! She was the first person in a wheelchair to perform in a theme
park production. She performs at Disneylands production of Aladdin. She also recently won Miss WheelChair California!
Luca “Lazylegz” Patuelli
We had the honor of meeting Luca at the 2009 AMC Convention in Philly.
His Mom was actually one of the first people to sit down with me at the
convention and talk about how life will be, with a child with
Arthrogryposis. And besides it being a little harder with all that they
have to go through, she was nothing but positive about her son! Luca is a
world renowned break dancer who uses only his upper body to perform. He
is absolutely amazing and such an inspiration to us all! Below you'll
see a video of "Lazylegz" who opened for the Vancouver 2010 Paralympics.