Mikaela Frances Jane

A website for our family and friends to keep up with Mikaela and her Arthrogryposis.
Also to help families find their way through this journey.

"Strength does not come from physical capacity. It comes from an indomitable will." - Gandhi

What is Arthrogryposis?

Arthrogryposis, is also known as Arthrogryposis Muliplex Congenita or AMC.

There are over 400 different types of Arthrogryposis, with differing signs, symptoms and causes. In some cases, few joints may be affected and may have a nearly full range of motion. In the most common type of Arthrogryposis, hands, wrists, elbows, shoulders, hips, feet and knees are affected. In the most severe types, nearly every joint is involved, including the jaw and back. Arthrogryposis is relatively rare, occurring in approximately one in 3,000 births. Mikaela being just arms makes her one in 200,000 births. And in Mikaela's case, it was ruled out as non-genetic. 

The word is broken up in Latin, literally means "Curved Joint Disease"

Arthro - Joints
Gryp - Curved
Osis - Diseased or Abnormal Condition

AMC is broken up like so:

Arthrogryposis - Curved Joint Disease
Multiplex - Multiple Parts
Congenita - Evident at Birth

It is a non-progressive disease.

Here is a list of resources you can check out to find out more about Arthrogryposis:




And where it all began for Melanie, when she came across a website about a little girl named Abby.

Arthrogryposis: A Text Atlas
Here is a website where you can download this book for free as a PDF:
Arthrogryposis: A Text Atlas (PDF)