Mikaela Frances Jane

A website for our family and friends to keep up with Mikaela and her Arthrogryposis.
Also to help families find their way through this journey.

 
 

"Strength does not come from physical capacity. It comes from an indomitable will." - Gandhi

 
 
 
 

Margaret Chaidez


The Sweetest Gift: Living with Arthrogryposis

Our friend Margaret is simply one amazing, dedicated Mom! When I was first started researching Arthrogryposis Multiplex Congentia I came across her blog and printed out a list she made. It was called 25 Reasons Why I am Blessed to Have a Special Needs Child. I put it up on my fridge and never thought I would have the honor of meeting the person who wrote this. She is now a part of our family and is doing something great! She is writing a documentary on Arthrogryposis and we always look forward to all of her updates! As she updates and finalizes it, I will continue to update this page.


"My son was born with arthrogryposis in 2006. Arthrogryposis multiplex congenita is a rare physical condition affecting 1 in 3,000 births. This documentary will show how people of all ages are living and thriving with the condition, overcoming obstacles and living extraordinary lives. I wanted to share our story and all the stories of our AMC families. This is a story about hope and inspiration."

 

 


Below is a video of Dr. van Bosse explaing every question you ever had about Arthrogryposis, and thanks to Peg we all have the pleasure of hearing him explain and understand Arthrogryposis Multiplex Congenita.



To learn and read more about
The Sweetest Gift
please visit:
www.amcdocumentary.org